Saturday, March 26, 2022

Sources for Wheelchair Hiking Trails -- March 2022

          


Blogs:
Wheelchair Wandering (WA & beyond, esp: 5/17, 5/18, 8/18, 11/20, 4/21)
Rolling Washington  (Western WA)
Tales of Trails  (national)

Online organizations:
Outdoors for All (WA wheelchair and bike rentals)
Disabled Hikers (WA guides and programs)
Ian's Ride (West Coast, annual multi-day trail ride to promote accessible trails)

Books:
Rugged Access for All by Chris Kain (national)
The Disabled Hiker’s Guide to W WA and OR by Syren Nagakyrie (upcoming) (Pacific Northwest)

Online videos:

Articles:



Lists:

Trail Databases:
TrailLink (national (former railroad) trails, filter for accessible trails)
AllTrails (national trails, filter for accessible trails)
WTA (WA trails, stay tuned for improvements to accessibility)


Also, look for webpages from state and national parks, webpages from forest lands, bike trails, and closed roads.

 




Sunday, November 7, 2021

Mt Rainier National Park




Clutching the brakes on the steep paved trails
at Paradise in Mt Rainier National Park


In different online forums, I've seen the question, "Is Mt Rainier wheelchair-accessible?"  Even though it's in my own backyard, I never really knew the answer, so I decided to do some research.  The answer will be disappointing to lovers of clarity, since it depends on what you mean by "accessible" and what you want to do.




Mt Rainier from Paradise trails




In early September, my husband and I spent three days at Mt Rainier National Park.  Answering the question of accessibility did not even cross my mind until about half-way through our visit, so there was not nearly enough time to explore this park of over 200,000 acres.  Acknowledging that the park is huge, I wanted to narrow my exploration  to what was unique about this place -- the mountain, with its alpine meadows, and the big trees below.  Even with this truncation, the area is too large for such a limited visit, so I relied not only upon my own experiences, but also on previous posts, suggestions from friends, and the insightful guide book, Barrier-Free Travel: WA National Parks for Wheelers and Slow Walkers by Candy B. Harrington of Emerging Horizons.  In addition, I trained myself to think of this as a contribution to that answer, rather than a comprehensive conclusion.



Blazing fall colors
from Paradise meadows at 
Mt Rainier National Park
Before I get to accessibility, let me briefly go off on a tangent of beauty.  The magnificent and awe-inspiring Mt Rainier floats above the horizon at a distance, boggling the mind as to how earlier humans could have understood it.  Covered in (unfortunately melting and receding) snowfields and glaciers, the lower half boasts fragile and lush alpine meadows.  Further below, the park visitor can enjoy mountain views, rushing rivers, and big trees.  The growing season is short, but the meadows explode with colorful wildflowers in the second half of summer, berries (and berry eaters) around Labor Day, and fall colors in mid- to late- September.  Our visit corresponded with the last warm(ish) sunny day of the season, rewarding us with the picture of a mountain seemingly on fire, as the mountain ash, vine maple, berries and other plants of the alpine meadows were awash with fall color.  The insane beauty of that day was definitely a highlight -- even in a life filled with beautiful memories.



Mt Rainier from trail near
Myrtle Falls, Paradise





Now, on to the main topic -- accessibility.  It's important to remember that Mt Rainier is a 14,411 foot volcano, and because it is so close to sea level, its prominence is over 13,000 feet.  This means that the land around the mountain is necessarily extremely steep, and accessibility needs to be accommodated to this geographical reality.  My conclusion? The accessibility of the park is related to your goals.  If you want to see the mountain up close, the park is quite accessible.  If you want to experience the mountain by hiking its trails, not so much!  Here's my humble run-down:






Visiting the park

You will definitely need a car and the ability to drive curvy mountain roads.  An Access pass, available for free by mail to disabled visitors, can be used to gain entry into the park.


Viewing the mountain

The main reason for visiting the park is to experience the mountain up close.  This is best accomplished by visiting the tourist areas of Paradise and Sunrise.  As the official park brochure reads, "Most visitor centers, restrooms, picnic areas ... are accessible or accessible with help for wheelchair users." To me, this is frustratingly vague, because "most" does not mean "all" and "accessible" is different from "accessible with help."


Parking lot at Paradise in
Mt Rainier National Park

The Jackson Visitor Center at Paradise is fully accessible.  Outside, there is a picnic area on pavement,  but no specific tables designed for wheelchairs (wheelchair users can sit at the table ends).  The large paved parking lot fills up quickly, but there are many disabled parking spots to the right of the visitor center and near Paradise Inn at the top.  There are seasonal accessible restrooms inside the visitor center and year-round accessible restrooms with flush toilets outside of Guide Services.  



Paradise Inn
The Paradise Inn has an accessible indoor dining room and an accessible cafe, with an accessible outdoor porch that offers a great mountain view.  The beautiful meadows at Paradise can be viewed from the parking lot, the inn or cafe, or from the visitor center.  They can also be viewed up close from the lower reaches of the meadows (there is a steep path that bypasses the stairs).  The Paradise webcams offer good pictures of actual conditions on the mountain and in the parking lot.


The Sunrise Visitor Center is accessible with help (steep ramp), through the north side entrance.  There are accessible restrooms, with flush toilets, and there are disabled parking spaces.  There may be accessible picnic tables.  I have read that there is a semi-accessible seasonal snack bar opposite from the Visitor Center (but I did not visit or verify that).  Sunrise webcams offer good pictures of actual conditions on the mountain and in the parking lot.


Log outside of
Ocanapecosh Visitors Center
The Longmire and Ohanapecosh areas do not offer mountain views, but Longmire is a good place to learn about the history of the park and both are filled with big trees.  The visitor center at Ohanapecosh and the Longmire museum and the national park inn are accessible, as is the dining room at the inn.  The Longmire webcam offers a good picture of actual conditions.




Throughout the park, there are various pull-outs on the road.  Some of them are unnamed and unmarked -- you can pull out and gaze at the mountain from your car whenever it is safe.  Some of them are officially designated, and you can pull off and park.  Waterfall views are tricky for wheelchairs, since most paths end in narrow, rocky trails with steps, meaning you can only see the falls from the top.  However, mountain views are scattered throughout the park and definitely appear on the way up to Paradise and Sunrise.


Reflection Lakes and Mt Rainier


One of these official pull-outs is at the aptly named (on a calm, sunny day) Reflection Lakes, east of the turn-off up to Paradise.  Along with the view, there is a paved lot with disabled parking and some benches (but no picnic tables).  Unfortunately, there is no accessible path to reach to trail around the lake, but the mountain is best viewed from the parking lot anyway.




Parking lot for Box Canyon
and Cowlitz River

Farther east is the pull-out for Box Canyon.  As I remember it, the parking lot side was a bust -- the path to the restroom is inaccessible and the path to the overlook is paved but steep, without a good view at the end.  (The Box Canyon Picnic Area further on is also very inaccessible.). 




Mt Rainier from
Cowlitz River


On the other side of the street, the short, paved trail along the Cowlitz River is better, leading to a bridge with a view of the river and mountain.  However, the trail is steep enough to make it very challenging for a manual chair, and the final downhill before the bridge has an evil cross-slope, so even power chairs may just want to stop and admire the view before the descent to the bridge.   Beyond the bridge, the trail completes a loop as a dirt trail that quickly becomes inaccessible, so it's better to turn around and return down that same paved path.





Tipsoo Lake and Mt Rainier

My favorite viewpoint is at Tipsoo Lake on Chinook Pass (eastern edge of the park on Highway 419).  A large paved parking lot (I think with disabled parking spaces and accessible restrooms?)  offers a view of the mountain, which positively glows at sunset --thus the crowds of people and tripods.  The trail around the lake should be accessible, but is definitely not (narrow and bumpy).




Lodging

The recently-renovated Paradise Inn at Paradise has at least two accessible rooms.  

The National Park Inn at Longmire also has an accessible room.

Despite our intention, we didn't stay at the White River Campground, so I'm not sure about its accessibility.  There were a few sites along the river, which seemed nice and flat, but not official ADA sites.  Otherwise, the campground looked and felt rather crowded.


ADA site at
Ohanaecosh Campground

We ended up camping at Ohanapecosh Campground.  I think it is often overlooked, because it is shaded and far from mountain views, but that means that the trees are bigger and campsites more private.  Loop D contains a couple of ADA sites (D20, D21) and a few flat non-ADA sites (the nicest was D24), next to an accessible restroom.  Unfortunately, Loop D is closed after Labor Day, and there are no other ADA campsites (and the Loop A restroom by our site was truly inaccessible).

Accessible restroom at
Ohanapecosh Campground


A ranger told me that Cougar Rock Campground has ADA campsites and an accessible restroom open past Labor Day.  A brief stop there showed that many sites were closed for tree hazard, including an ADA site.



There were several campgrounds on the map just outside of the park, and I just feel like some of those might be accessible.  But, I don't know yet!


Hiking

The official park brochure tells me that I can "find fully accessible trails at Kautz and Paradise.  Some trails at Paradise and Longmire are accessible with help."  So, my husband and I set off to explore.

We didn't make it to any of the Sunrise area trails, because of time.  Two of the trails are listed as "Easy," so they may be accessible; then again, they may not.   Does anyone know?


Ohanapecosh hot springs --
very warm water
springing from the ground


The trails in the Ohanapecosh area were disappointing.  We tried to roll to the hot springs from the campground, but the trail soon grew narrow and rocky.  Likewise, the Grove of the Patriarchs Trail should be accessible, since the path is a boardwalk around big trees, but the path to and from the boardwalk is frighteningly inaccessible.  





Paradise, Mt Rainier
(most trails near the visitors center
were paved)




Paradise offers a network of trails, sprouting from the visitor center and parking lot.  Wheelchair hikers can head toward the stairs and mountain on a paved path to right of visitors center, and then turn right before the steps onto a short gravel path, leading to alpine meadow trails.  The mountain's steep prominence makes for difficult/thrilling/dangerous wheelchair hiking even though the paths leading out of the visitors center are paved.  The park brochure claims that there is at least one fully accessible trail at Paradise, while other trails are accessible with help.  The park ranger at Ohanapecosh Campground told me that the Skyline Loop was accessible.  My take is colored by the type of chair I use (manual off-road Freedom Chair by GRIT) and by my assistance (super-human spirit and strength of an able-bodied pusher/braker who does not want me to get hurt).  Nonetheless, I would not call any of the trails accessible for manual chair hikers, and they are only barely accessible for hikers using power chairs.  Unfortunately, two of the most iconic views are not accessible -- you can get close to Myrtle Falls and Glacier Vista on the steep paved trails, but the accessibility stops short of the actual viewpoints. 



Inaccessible Iconic View #1:
Mt Rainier from Myrtle Falls
Overlook


The Skyline Trail to Myrtle Falls is paved, but very steep.  The paved part ends at bridge over the falls, so you can see the river as it disappears over the edge, but you can't actually see the falls. The trail beyond the bridge becomes unpaved and inaccessible.  The greatest travesty is that the trail to see the falls, which turns off of the main trail just before bridge, is totally inaccessible --meaning that you can get near to the falls (with a lot of steepness and difficulty), but you can't actually see them.  I asked my husband to hike the short distance from the main trail to the falls, and he took a photo for me, which is one of the most gorgeous spots accessible to walking visitors -- but not to those of us in wheelchairs!










We also took the Skyline Trail to Glacier Vista. The Skyline Trail is paved, but this part is incredibly steep.  I ascended only because of my Freedom Chair's levers and husband's strength.  I survived the descent only with clenched teeth, aching brake muscles, and the tenacious hold of my husband behind me.  I know that at least one hiker in a power chair uses a chest sling so as not to fall forward off of the chair.  Maybe going on the Waterfall Trail to Deadhorse Trail instead of Skyline is better, but I have also heard that Deadhorse Trail is incredibly steep.  Either way, you can only get so far, because the trail to  Glacier Vista becomes hard-packed dirt with water channels --obstacles which probably prove impassable to all but the most sturdy off-road wheelchairs.  This is truly unfortunate, because the view at Glacier Vista is amazing.  Inaccessible Iconic view #2: Mt Rainier from Glacier Vista:


Nisqually Valley

Perhaps most forgiving of the inaccessible accessible trails is the Nisqually Vista Trail.  I actually hiked this trail a couple of years ago (see 2019 post), so things may have changed.  The typical access to the trail is from the lower parking lot at Paradise, but this involves a large staircase, so we approached the trail from behind the visitors center.  There are views of the Nisqually Glacier and the mountain, and there is a multitude of blue/huckleberry plants.  The trail is paved, and the altitude gain is minimal, but the trail is very hilly, and it is extremely challenging for a hiker in a manual chair.  A hiker in a power chair with a strong battery should be able to enjoy this 1.2 mile loop and the berries -- but watch out for bears!





Mt Rainier from overlook
at end of Kautz Creek
boardwalk

Longmire-area trails hold a little promise.  The Kautz Creek Trail, highlighted on the park brochure, was easy to find.  It begins across from a a paved lot with accessible vault toilets and with picnic tables on hard-packed gravel, about halfway between Longmire and the south-west Nisqually entrance.  Unfortunately, there is a steep approach from the highway to the trail.  The trail itself is a short (500 feet each way) boardwalk ending with hard-packed gravel and a view of the mountain.  Unfortunately, the slope on the trail would be challenging for hikers in manual chairs, and the poor access from the highway makes it difficult for any chair.

The Trail of the Shadows begins across from the National Park Inn at Longmire.  I've read that this historical interpretive trail of hard-packed dirt through the woods is accessible for about 700 feet, although I don't think there are any mountain views.  I didn't actually try this trail, so I can't speak to the conditions.

Mt Rainier from Westside Road

The Westside Road, now closed to vehicles, provides good wheelchair access to a river with mountain views for a short while, but the road surface soon devolves into rocky unpleasantness, so it's more of a short roll to a viewpoint than a hike.





Is Mt Rainier National Park accessible?  If you want to visit the park to experience the mountain, the park is quite accessible.  If you want to stay overnight in the park, it is minimally accessible (a few rooms and a few campsites).  However, if you want to go hiking in the park (which, of course, I do!), the park is woefully inaccessible.  Every year, power wheelchairs descend onto Paradise for "Ride Tahoma" (they have a group by that name on Facebook), to help raise awareness about the need for accessible trails. 



Tipsoo Lake -- future ADA trail???
The other mountain passes in WA boast at least one wheelchair-accessible trail each (Rainy Lake Trail in the North Cascades, the Iron Goat Trail near Stevens Pass, and Gold Creek Pond Trail near Snoqaulmie Pass).  Wouldn't it be wonderful to have a wheelchair-accessible trail at Mt Rainier's Chinook Pass, as well?  An accessible trail around Tipsoo Lake at Chinook Pass seems feasible, since there already exists an inaccessible trail.  The lake and trail sit at a large paved parking lot, with accessible vault toilets and disabled parking spots (I think), and a spectacular mountain view.



Monday, October 4, 2021

Flying without the wheelchair (skydiving)


Flying with Vlad at Skydive Snohomish

I thought that my favorite quote was from Mal Reynolds, Captain of the Serenity (Firefly). Recently, I discovered that his quote was actually a bastardization of a statement by Martin Luther King, Jr. Putting the two together creates my own meaningful sentiment, "If you can't fly, then run; if you can't run, then walk; if you can't walk, then crawl; if you can't crawl, find someone to carry you." Although, based on recent experience, I might just change that to "If you can't walk, then fly!"

I have always wanted to fly and dreamed of flying. Loss of mobility has only strengthened that desire, and I can't wait until jetpacks become de rigueur. In the meantime, though, I content myself with flying down hills in my wheelchair, with occasional ventures into flying down snow-covered hills or across water. I've never had any desire to try sky diving .................... until now!

I am fortunate enough to have access to an Adventure Club at the local MS Center. I call them my adrenaline enablers, since they sponsor adventures for people with MS -- usually including modifications for people in wheelchairs. Several years ago, they advertised an outing to the local indoor skydiving center, and it was open to people in wheelchairs. As I said, I had never been interested in skydiving, but I feel compelled to take advantage of any opportunity given to people in wheelchairs, so I joined them at iFLY in Tukwila, WA, a suburb south of Seattle.


Admittedly, it was a challenge to put on the required flying suit and earplugs, but I had someone to help me, and the staff were very helpful, as well. The flyer enters the transparent vertical tube with the assistance of 2 iFLY staff members. In order to simulate the free-fall of skydiving, a huge fan is turned on, forcing air from the bottom to the top of the tube, holding the flyer aloft. Depending on the flyer's position, s/he moves in different directions. The basic flying position involves arching the back, so that the hips are the lowest point, with the head and feet up high. Those of us with no control over our lower limbs need not fear; iFLY has created a contraption that holds a flyer's legs in that raised position. The flight was short -- only a few minutes -- and I was lucky enough to do it twice. At the end, I was completely exhausted and dehydrated, but overjoyed. In fact, I was so excited about this experience, that I did it another time.


Skydive Snohomish

Fast forward several years. The same MS Adventure Club sent out a notice about actual skydiving, including spaces for people in wheelchairs. There was again this compelling feeling that if someone offered an opportunity for wheelchair-users, I ought to take advantage of it. This was now combined with a love of flying, a memory of a fantastic time at the indoor center, and the knowledge that the free-fall part was not a stomach-dropping fall. Daunted by Covid the first year, I signed up the second year, and I was happily rewarded.




We went to Skydive Snohomish at Harvey Airfield in Snohomish, WA, a town just north of Seattle.
The front door was not wheelchair-accessible, but the staff were waiting for me, and they directed me to a side door, which was accessible. The restrooms were outside, next to the staging area. There were several unisex rooms, and the first one was designated "accessible." I suppose it was, because I could get to and inside of it with my wheelchair, and there was a grab bar on the side wall. However, the room was narrow, so I couldn't turn my wheelchair with the door closed, and I couldn't fit the chair to the side of the toilet.



The first step was watching an video, which went through the basic positions and procedures of tandem skydiving -- including preparation, flying to altitude, free-fall, parachuting, and landing.




Getting strapped in before 
the jump

We then went outside to the staging area, where we were strapped up (we didn't put on the usual flight suits or helmets, due to Covid) by the tandem instructors. For wheelchair users, they had additional straps, so that the tandem instructor could pull up on our legs when it was time to land. My tandem instructor, Vlad, did everything pretty much by himself: lifted me out and back in to my wheelchair, rolling me from side to side on the ground in order to fasten all of the straps. He had obviously done this before. It was quick and easy. Since I am used to people poking and prodding me, it didn't even seem intrusive.


All strapped in,
including the special
straps for the instructor to 
pull up my feet for landing.















The plane and my
team of helpers.

We boarded the plane in small groups, with some people waiting in the staging area. The plane
made continuous trips to transport
jumpers to the sky, making the entire operation seem like an efficient factory. It made me think, "How bad could this be, if all of these people were doing it?"In order to get in the plane, I backed my wheelchair up to it, just below the opening, and two staff members lifted me up into the plane, then helped me to the proper sitting position.




On the plane
We all sat on the floor, in-between the legs of the person behind. I was in the front of that chain, right by the open door, so I would be able to get out of the plane first and easily. The flight itself was noisy, but short.
During the flight, the tandem instructors attached themselves to us.







When we reached altitude, my instructor and I opened the door and rolled out, while the others scooched forward. There was no moment of hesitation, because we were attached to the instructors, and they quickly rolled out.




The free-fall was in fact similar to the indoor skydiving experience, and the tandem hook-up seemed to keep us in position. The only negative part of the experience was that -- despite swallowing and breathing out -- my ears were blocked and a little painful.





After a minute or two, the parachute opened with a jolt, and we spent a couple of minutes gliding and turning under parachute.





All too soon, it was time to land. Almost all of us first-timers landed gently on our butts. My instructor was able to pull on the special straps to raise my legs, so that I didn't get them tangled in the landing.




The staff brought my wheelchair out to the landing spot, and after removing the parachute, they lifted me into my chair. It was a short and level roll back to the building. As with indoor skydiving, I was exhausted, deaf, and parched, yet overjoyed, after my flight.



The entire experience was fantastic! The efficient and smoothly-run organization was staffed by extremely helpful, friendly, and knowledgable staff. I was able to communicate my needs and concerns before the flight day. Nobody looked surprised to see a wheelchair in their midst. Vlad, my tandem instructor, inspired the utmost confidence, with his skydiving experience, positive attitude, and helpful approach. I might wish the restroom were larger (I think I would advise simply avoiding it, if possible), but that was a minor inconvenience in a wonderful day. The only really challenging part for me was the speed and noise which guided the event from the moment the training video ended through the landing. I guess my advice would be to be prepared for that, and to voice any concerns to your instructor before you are strapped in (don't assume that s/he has any prior knowledge). Hopefully, the club will sponsor skydiving again next year, as I am already hoping to fly again.





Monday, July 5, 2021

Traveling with a wheelchair (revisited)




A recent trip to Wisconsin included a visit to -- 
you guessed it -- a cheese factory!


A recent flight to WI t
aught me a lot about myself and my relationship to the Corona-virus pandemic.  It also reminded me about the challenges of flying with a wheelchair.  After I returned, I took a short road trip to a neighboring state to see some friends.  This jogged my memory about the challenges of staying in a hotel.  I'd recorded some of my travel tips before, but these recent trips were a good memory-dredge, so I figured I'd mention them again.  

Travel Wheelchair

My husband has a collection of skis and chooses a pair based on conditions.  Likewise, I have a collection of wheelchairs and choose a chair based on conditions.  For most domestic travel, I choose my Golden LiteRider portable battery-powered chair.  The pros are that it dissembles and fits into a space as small as a Toyota Prius trunk.  The heaviest piece is 35 lbs.  The battery seems to last as long as I need, and it takes me up significant hills.  I can roll a carry-on suitcase behind me with the non-joystick hand, and the charger fits in the basket below the seat.  The cons are the lack of customization (one size fits all), and the wiggle in the joystick that makes it difficult to steer.  There are always plenty of outlets in airport, so emergency battery charging is not a problem, and I bring an extension cord for charging in hotels, which are sometimes limited in outlets.  When I board the plane, I take the joystick with the cord and the charger with me.  So far -- knock on wood -- the chair has not been extensively damaged.

Pre-flight

When making an online flight reservation, I always find and fill out a form requesting wheelchair assistance (and some airlines have even more forms) that lets the airline know I'm traveling with a wheelchair.  These forms differ and require different details.  I've found that some airlines don't allow me to check in at a kiosk, because of the wheelchair, but I never know which ones they are, so I always just head to the line to check in.  I always remind them at check-in that I require an aisle chair to get to my seat, because that information seems to get lost.

Airport Security

I think that my golden ticket for flying is my TSA pre-check authorization.  Yes, it costs ($85 for  5 years), but it is worth every penny, because it allows you to keep your shoes on, to leave your  electronic items off, and -- most importantly -- to skip the extensive and invasive "body search". Instead of the whole long and painful process, the assistant simply swabs your cushion and hands to check for suspicious residue.

Aisle Chair

If everything goes smoothly, you can ride your own chair to the plane's entrance, where you will swap it (don't forget to take the joy stick and charger with you and to turn off the brakes) for a narrow aisle chair, pushed by two assistants. They will often assert that all straps must be buckled (and there are a lot), but not tightening the straps can cause your knees to bump or your clothes to get caught. You may have to remind them that many aisle seat hand rails can be moved up and out of the way when a secret button is pressed.  For de-planing, this process is done in reverse.  Remember that you are usually the first to board and last to de-plane, so arrive at the gate extra early (about an hour) and avoid tight connections.  In fact, you will probably reach baggage claim after all of the baggage has been removed, so you may need to go to the unclaimed baggage office to collect yours.  If everything doesn't go smoothly (I'd say about 20-25 % of the time), everyone -- including you -- waits to get on, or you wait to get off.

Airplane lavatories

Most airport bathrooms are reliably accessible.  Most airplane lavatories are reliably not. When wheelchair users no longer travel, the most common reason is the difficulty of going to the bathroom.  Dual-aisle planes are required to have an accessible lavatory (usually this is accomplished by temporarily collapsing the wall in between two neighboring lavatories), but this requirement is not very helpful.  Firstly, it only covers dual-aisle planes, which are generally a subset of trans-oceanic flights.  Secondly, accessing such a lavatory necessitates calling the flight attendant for assistance, assuming there is an aisle-chair on board (legally, there should be), assuming that the flight attendant knows how to assemble the aisle chair (you may want to learn how before your flight, just in case), cutting in front of the line of waiting people while the lavatories are combined for you, transferring to and from the toilet by yourself, and pulling down/up your pants on a public toilet or wheelchair.  

For many, this is understandably too much.  Some consciously dehydrate and hope for the best, which is risky and probably unhealthy.  For men, the best option may be a condom catheter with a leg bag and collection bottle.  For women,  the best option may be an in-dwelling Foley catheter (urethra or supra-pubic) with a leg bag and collection bottle.  All in-dwelling catheters must be inserted in the hospital, but a temporary urethral one can be inserted rather quickly and painlessly by a urology nurse, can be kept in for awhile, and can be removed at home by you.

Hotel accessibility

The other big ticket item is lodging, which often requires a lengthy conversation with the front desk agent, even when the room is advertised as "ADA compliant."  The main thing is a level entrance to the building and room, with doors wide enough to get into room and bathroom.  I've found that asking someone whether or not their location is "wheelchair accessible," is often useless, as people have different interpretations of that definition, and they often don't consider one small step a problem.  If the room is not specifically ADA-certified, I ask the front desk person to measure the bedroom and bathroom doors, then I compare that to my wheelchair width. Remind them to measure passable width with the door open, and not the width of the door frame, since the hinges impede passage.  I have taken off the bathroom door by removing hinges, when it was just inches too narrow (a good reminder to bring tools and a handyperson or else ask hotel engineering).

Hotel bathrooms and beds

For the shower/tub, ask if you can get in (width, configuration, shower door, threshold) and if there's a shower chair/bench.  If the shower has a fixed bench, ask how far it is from the controls and from the shower head (holder).  For the toilet, ask if you can get to it (width, configuration), how high it is, and if there are any grab bars.  You may have to bring your own vertical pole or toilet seat ???riser or even a commode chair.  For the bed, ask how high it is (the perennial problem!), if there is space beside the bed for a wheelchair, and if there is an electrical outlet nearby to charge your chair at night.  You might want to bring a bed rail or vertical pole, and an extension cord.  If the bed is too high, you may have to remove the box spring or base frame (lots of work!), so again, be prepared with those tools and engineers.  You may even have to use a roll-away bed (they're usually lower).  

Accessible activities

We found accessible activities where we didn't expect them.  Along with internet research before leaving, we relied on on-the-spot personal referrals, informational phone calls, and tourist brochures.  If  someone is savvy to accessibility, then asking them about accessibility by name may work. Luckily, it seems the world may be heading in this direction.  In many cases, however, it might be better to ask specific questions related to your needs.


Obviously, there are a lot of challenges and a lot of preparation involved in traveling with a wheelchair.  To me, it's still worth it.  








On the road again -- post(?)-Covid travels

Passengers arriving at CWA (Central WI) airport with masks

I have spent the last year living in fear --only a low level, but fairly constant. I take an immuno-suppressive drug to counteract an auto-immune disease, leaving me susceptible to the weakest virus. So during the Corona virus pandemic, I adhered strictly to WA state's restrictions, and isolated myself from family, friends, and travel.  For those of us in WA, those restrictions began in March 2020, so that was a very long time, and there were very few exceptions.  Doing my part to "flatten the curve" for the community morphed into doing everything possible to protect myself.

For me, the approval of the vaccine was almost a miracle.  I say "almost," because there was some concern as to the effect of the vaccines for those with suppressed immune systems, leading to the depressing thought that I might be stuck in isolation forever.  However, my neurologists assured me that the vaccine was probably working for me through unmeasurable mechanisms.  With this, I felt this miraculous sense of freedom and permission to once again see friends and family, interact with people, and travel.  I decided to take advantage of the extra security of airports and planes still requiring masks, in order to fly to WI and see my parents.  

I think that the trip to WI was the best thing I could have done to ease myself out of a Covid-restricted life.  Flying was not as scary as I thought it might be: my neurologist assured me that airline flights were not known virus-spreaders, my research indicated that plane's air filtration systems worked to prevent disease spread, and Delta was very conscientious about requiring all passengers to wear masks, except when eating or drinking.  Airports were also not as frightening as expected, since they required masks and distancing, as well (though the passengers in SeaTac and MSP were a little less likely to comply, and the staff was less likely to enforce the rules)

Sign at MSP airport
Sign at MSP airport


Free vaccinations and coffee
at the MSP airport









At my destination, I mainly visited with family and friends, who were also vaccinated.  When we did venture into public spaces, it was always and only outside.  WI was a scary place for a West-Coaster to visit, because of a contentious history with the virus, masks, and restrictions.  Still, I clung to the data showing that no case of Covid-19 transmission had occurred outside.  Every time I've visited, the town has been different: at first, changes, such as the installation of city utilities, seemed oriented toward residents.  Then the big-box stores moved in, incorporating the desires of the whole region.  Current changes are oriented toward residents and visitors alike, and the concept of "accessibility" seems to have entered into the language and mind-set.  For example, a local park has a paved and accessible path, a paved walk-way was built along the river, and botanical gardens were being built with an eye toward accessibility. Thus, we were able to enjoy outdoor activities relatively free of crowds.


New river walk in Wausau, WI



Sign for accessible paved path to Eau Claire Dells, WI


I doubt that the cavalier approach to potential virus transmission was good for the state of WI.  Still, I think it may have been good for me -- confronting my extreme caution with extreme unconcern may have allowed me to settle on a happy medium, which helped me to prepare for the flight home and the upcoming end of restrictions in WA. I realize that the articles in The New York Times may be accurate, and my immuno-suppressant medicine may yet be proved to render the vaccine less effective.  However, for now, I have to believe in the power of these vaccines, the assurances of my neurologists, and my experience during my travels.  And I must admit that it felt wonderful to travel again!