I have friends who live for skiing.
When the first leaf of autumn drops,
they immediately turn their focus to snow.
Is it cold enough?
Is there enough snow? Are you ready?
Well, actually, no. I'm not ready yet.
I love and appreciate the unique offerings of all four seasons.
However, while I do not live for
skiing, skiing has been instrumental in defining my life and shaping my place
Growing up, I went skiing with my family a few times each
year. Skiing in Northern Wisconsin
is not for the faint of heart, since winter temperatures were never warm and
sometimes even below zero. I’m not
sure if it was the cold, the expense, my schedule (gymnastics season was in winter),
or my own physical/psychological limitations, but I never became more than a
mediocre skier. After high school, living on the west
coast put me in proximity to actual mountains, but – without a car – even a few
hours is an impossible distance, so I never graduated from mediocrity. I
loved the adventure of it – especially when trying to keep up with my brothers
or Ted – but my sense of adventure was always stronger than my technique. Still, that spirit and that foundation
served me well when trying to learn to sit ski.
As my MS progressed, the loss of mobility
wreaked havoc with my sense of identity and place in the world.
Who was I, if not an adventurous and active
After years of asking
this question without answer, I discovered Outdoors For All
, a local
non-profit organization offering adaptive outdoor activities.
I have since tried
some of their summer sports – kayaking, water skiing, and biking – but
I started with their most famous program – alpine skiing.
Learning to sit-ski was one of my best life choices.
Sit-skiing helped to create a new and
yet connected sense of identity.
still recall the day of skiing when Ted told me, “Today you reminded me that you
are an athlete.”
afforded me a sense of place in my community.
When everyone rehashed their experiences from the slopes, I
had stories of my own to contribute.
Once a week for nearly two months out of every year, I belonged to a
tribe with shared rituals such as waking up early, hoping for good snow
conditions, skiing most of the day, and hitting the pub for an après-ski sharing
of stories and drinks.
had an activity I could do together with my husband. We ski together as a team in this unique sport of tandem
Christmas Day 2016 (video by Ingrid, while skiing!)
The sit-skiers who star in Warren Miller films always ride
contraptions allow the skier to load him/her-self on the chairlift, and to ski almost anywhere independently. On the downside, it is difficult to balance on the monoski's single ski. I remember that when I competed on the balance beam in high school, kids watching in the bleachers used to take bets on how many times I would fall (and this was before MS!) ... so maybe a ski requiring good balance wasn't for me!
|Mountain Man Biski|
I chose, instead, a biski.
With two skis underneath, it is much more stable than a monoski. Their
design allows you to be connected to someone via a tether, so that he/she can assist you with turning and
Because my muscles can fatigue before I do, I rely on that backup assistance to help me out when I
can no long initiate my own turns or stops.
Unfortunately, most biskis are difficult to impossible to
self-load, requiring reliance on two able-bodied skiers to help you on and off
of the chair lift.
I started with
a Mountain Man biski, but I soon switched to a Bi-Unique
(I think they fit
better for those of us with hips).
I have also tried a HOC
and a Tessier
: both of these are
high-performance machines – they turn on a dime, requiring less effort to
steer, stop, and load.
addition, they have shock absorbers, which is a life-saver when going over
bumps and moguls with only your spine to absorb the shock.
Despite these downsides, I prefer the Bi-Unique
because I learned on it or perhaps because it is lower to the ground.
Although the closeness to the ground
means I usually end up with a face full of snow on every run, it also means a
shorter distance for a fall, which is, in turn, an amazing confidence
The main disadvantage,
which I realize regularly, is the lack of a shock absorber.
I end up in the air quite a bit, and
while the experience of launching and flying is exhilarating, the landing
absolutely crushes my spine.
in a never-ending cycle, flying off of moguls increases the speed and lack of
control, which increases the number of flights into the air, etc.
Bi-unique has recently developed a
model with shocks – the Dynamique
– which I can’t wait to try.
I know that some organizations teach sit-skiing by thumbing
(holding on to the back of the ski) down an easy slope, and then letting the
participant try it independently.
I learned to ski by being tethered, where a volunteer clipped one end of
a rope to the back of my ski and then held onto the other end.
As I gained confidence and skills, the
tether rope grew longer, and the volunteer’s assistance grew smaller.
Although it takes longer to gain
independence in this manner, I prefer it.
There don’t seem to be many straight, easy slopes around Seattle.
Even the green runs seem to involve at
least one steep headwall and a slanted run-off, making independent learning
Also, as I mentioned,
my core muscles gradually fatigue over the course of the day, so I appreciate the steering and
stopping assistance, as well as the confidence boost provided by having an emergency
In addition, I
have skied on some steep hills that I never could have done on my own.
Finally, Ted and I have made tandem
skiing into a sport of its own – kind of like doubles’ tennis or synchronized swimming. In the beginning, I explicitly requested NOT to have Ted as my tetherer; but within three years, both of us mastered our respective skills, and now we ski-dance down the hills (well, except for the not infrequent instances of marital miscommunication!).
Sure, it would be nice to ski
independently, but realistically it would only be on the easiest of hills for a
I started out at Summit West at Snoqualmie Pass
in WA (about
45 minutes from Seattle).
lodge is quite accessible, but the skiing is limited.
If I could more easily go between the different
parts of Summit (East, Central, West, Alpental), there would be plenty of good
runs available, but I think that the connections between the ski areas are
tricky (relatively flat or lengthy) and not all of the lodges are wheelchair
|Mt Rainier at Crystal Mountain|
I then skied for a few years at Crystal Mountain
hours from Seattle).
It is the
home of my favorite run, Green Valley.
At the top of the gondola and the REX (Rainier Express) chairlift is a
stunning view of Mt Rainer.
Crystal's top lodge does not have accessible bathrooms, but the mid-mountain lodge is a great place to stop for lunch without having to go to the bottom of the ski hill.
This lodge has a couple of old wheelchairs that spend all winter in the lodge entry-way. Of course, these wheelchairs are usually in
terrible shape (no push rims, no foot holders, etc) but they allow me to enjoy lunch with friends up on on the mountain.
Crystal offers 50% off of lift tickets for disabled
There is disabled parking
near the main lodge. It is quite an incline to get from the parking lot to the first floor of lodge. The first floor of the lodge has accessible bathrooms. There is an elevator to the second floor cafeteria and chairlift area (this elevator has been known to be out of
service, so call ahead).
|North Cascades at Stevens Pass|
In recent years, I’ve mainly been skiing at Stevens Pass
hours from Seattle).
Two of the lodges at Stevens have ground floor
access and an elevator (which has never been out of service, in my experience),
allowing access to the restrooms, chairlift area, cafeteria, and
offers a free companion/guide lift ticket for sit skiers. The top of the Tye Mill chair lift has a fantastic view of the Cascades.
A friend told me that Mt Bachelor
has a good adaptive skiing
program, so I hope to try that later this year.
The jury is still out on whether Mt Hood
and Mt Baker
be good sit-ski possibilities.
know that some of the ski resorts in Colorado and Utah have adaptive ski
programs, as do many of the Canadian ski resorts in British Columbia.
My favorite place to ski so far is Revelstoke
, in British
They have over 1 mile of vertical, with long, fun, relatively uncrowded ski runs and an adaptive ski
program with extremely reasonable prices and the most incredible staff.
They allowed Ted to tether me and
provided a great mountain guide/lifter, who we ended up skiing with all of the
They helped me get my
wheelchair and sit ski up the gondola in the morning and back down at the end of the day. The lifties were familiar with loading/unloading sit
skis on chairlifts.
I hope to go
back again later this year.
|PVC Overalls |
(they don't only come in bright yellow!)
I have been sit skiing and refining my ski wardrobe for about 10 years now, and can offer a few clothing
The first is to
wear cheap PVC overalls instead of expensive Goretex ski pants.
Especially on the West Coast (Sierra Cement, Cascade
Concrete), the snow is so wet that Goretex usually isn’t enough to
keep you dry.
Because of the ski
design (there aren’t drainage holes in the seats), you end up sitting in a
puddle of melted snow and soaked even when it’s not snowing or raining.
Wearing overalls with suspenders ensures
your pants don’t fall down or ride down when sitting.
The lack of breathability doesn’t matter, since you don’t
use your legs anyway.
And the price is right.
While Gortex ski pants can run you $200 (and don’t keep you
dry anyway), you can buy PVC overalls at a WalMart or marine hardware store (this is
Seattle) or Amazon for about $20.
A second recommendation is a “turtle” or neck gaiter. Because sit skis put you so close to the
snow, a lot of turns result in snow spraying directly into your
face. To avoid finishing each run with a frozen, snowy face, I recommend a turtle or balaclava that covers your neck and can be pulled
up to cover your lower face as well. Finally, I would recommend the warmest possible boots and gloves,
reinforced with hand and toe warmers.
Wind can be brutal on the chair lift or at the top of a run. Your feet are strapped in and don’t
move. Breathability is less
of an issue than heat retention. In
addition, many people with spinal cord injuries have difficulties with
|My new career as a disabled snow-sports fashion model!|
Many of the resorts provide volunteers, instructors, and/or
rental equipment through their ski schools or a local non-profit
organization. If you own or can
rent your own equipment, you are not limited to ski resorts with adaptive ski
programs. In that case, you should
look for resorts with wide blue runs (unless you’re really good, of course),
chairlifts that take at least three people (you and a lifter on each side), and
staff that either has experience with sit skis or a positive attitude about
making it work. And, if you even
happen to be in the Pacific Northwest and want to go skiing (either standing or
sitting), let me know!
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